Tue 31 Dec 2019: New Years Eve
Picked up Fiona at 10:30am
Seetos come over for lunch.
Bindy and Ange join for dinner. Vanita also comes over after 9pm fireworks.
Spent the night doing a jigsaw puzzle - started 5:30pm and finished just after 1am
Tue 31 Dec 2019: New Years Eve
Picked up Fiona at 10:30am
Seetos come over for lunch.
Bindy and Ange join for dinner. Vanita also comes over after 9pm fireworks.
Spent the night doing a jigsaw puzzle - started 5:30pm and finished just after 1am
Sun 29 Dec 2019: Scarborough Beach
Mare picks Kaylene and I up at 10:30am for a drive down south towards Wollongong.
The place she wants to have lunch at is busy so we go to the beach first.
At 1pm drive back to the hotel for lunch. Popular place.
Meet up with Jacq and family at the beach.
After the beach, Mare drops us off at Seetos. Janet has gone to pick Fiona up and meets us at Seetos for dinner.
Thu 26 Dec 2019: Boxing Day
Lunch and dinner at Strathfield.
Invite Seetos, Soph's mum and brother, Jacq and family, and Mare
Wed 25 Dec 2019: Christmas Day
Have lunch at Carl Simon's place.
Dinner at Bindy and Ange's place.
Sun 22 Dec 2019: Bills in Surry Hills
Have early dinner in Surry Hills with Jacq and Sam Mar for her 40th birthday.
Dinner is at Bills, 359 Crown Street.
Jacq gives me a lift.
Sun 15 Dec 2019: Lights of Christmas
Went out to see the Christmas lights at St Mary's Cathedral with Evan and Janet
Sun 15 Dec 2019: Koi Christmas High Tea
No more lockdown, so Mare booked another high tea experience, this time in the Koi cafe in Top Ryde.
Attended by Kaylene, Jacq, Mare and I
Thursday 12 December 2019
11:15am appt with Dr Sanjay Warrier at Clinic B Level 2 COBLH
Apparently cancer was level 1 and slow growing. No cancer was found in the lymph nodes. I will just need tablets. No need for chemo or radiation. I need to see the oncologist. His team will arrange and contact me about the appointment.
I get a medical certificate to cover work up until 20 March 2020. Make follow-up appointment on Monday 16 March 2020 at 9am.
11:45am see Kate the breast care nurse. She checks and removes the bandage, checks the nipple. Checks the drains. Only 1 of them can be removed.
12:45pm I have to get another blood test done.
Thursday 5 December 2019
6am Check BP, temp and pulse.
Pee and poo.
Feel so tired.
7:30am Doctors do the rounds. Says my drains need rebandaging. Also says I should be good to go home today. We'll see how it goes.
8:00am do a pee and a poo.
9:00am Breakfast
Ask for a panadol - as I have a headache.
Nurse comes in to take the canula out. She also changes the dressing on my drains.
9:50am nurse comes in to take blood for testing
12 noon I have a shower. Have lunch.
Message Jenny, who can pick me up and take me home. Lily is out with her walking group and Janet is still at Concord.
2:56pm Jenny drops in to pick me up. Stops in Enmore to get some takeaway, before we head to Concord Hospital to visit Janet.
Janet also gets discharged, while we are visiting - lucky, Jenny is available.
Kaylene and Nathan goes to the Khalid concert - if I wasn't sick - I would have gone.
Wednesday 4 December 2019
Woken up by nurse to have BP, pulse and temp taken.
7:30am breakfast.
Dr Gary Sharp checks in. I ask him about Melbourne travel - says it should be ok.
Dr Daniel Oh checks in. Asks me about Melbourne travel and forms I need to complete to travel - he fills them in, signs them and gets them back to me.
Kate, the breast care nurse checks in.
Lunch is served.
Email the forms to Qantas.
LC, ES and CS visit. Also told that they are closing down level 9 and I need to move level 8 room 8.
Views aren't as great and seems smaller.
Have a shower and change my clothes, which LC brought for me.
6:30pm dinner time
After I have eaten, they leave to go visit JT, who is still in hospital - she needs to go through more tests.
8:30pm Daz drops in for a visit.
9:30pm Take antibiotics
11:00pm can't sleep - have a painkiller and panadol.
Nurse changes my drains
Tuesday 3 December 2019
7:30am Lily drops Janet and I at COBLH
8:00am back on level 3 Day surgery waiting room. Apparently Dr Sanjay has been called in for another surgery.
10:30am finally wheeled in to prep room. Assistant anethestist puts the canula in.
Dr Sanjay comes in and removes my bandage. Checks the nipple - says it's a bit dark, bruised, but it should be ok.
SPY machine is used again. Dr Ryan injects the dye and they use the machine to check the nipple. Says it's all good to proceed with surgery.
Nurse puts monitor pads on hairline above head - to measure brain and heart.
Wheel me in to operating theatre. Dr Ryan administers the anesthesia. I check out the operating theatre. They put my bed beside the bed in the theatre and the nurse asks me to scoot over, which I do. And I am out like a light.
12noon wake up in the recovery area. Nurse Cheng checks if I am ok. Asks name, DOB, etc.
12:30pm Feeling a bit of pain - notify nurse and get injected with a painkiller.
1:00pm Taken up to Level 9, Room 33. Nurse Charlotte is on duty.
1:45pm eating lunch - egg and mayo on brown bread. Apple juice. Cheese and crackers, eat the crackers - give the cheese to Kaylene when she visits.
2:30pm LC and JT visit. Bring my jewellery, phone and snack food.
Nurse comes in to take my blood pressure.
Student nurse comes in and is shown what to look for. Shown the drains, I now have 2 bags and the pico bandage.
Given an Endone tablet for the pain.
Another nurse gets shown how to insert the antibiotic drip.
More BP, temp and pulse taken.
Kaylene comes after work and after visiting Priti next door. Needs to empty and dry her carry bag. Her bottle of water leaked.
4:45pm they leave.
5:00pm nurse gives me panadol.
Go for a pee and change into my pj's out of the hospital gown.
6:00pm dinner is served.Eat everything bar the sandwiches and lemonade. Pretty good dinner.
Watch 7 news.
Watch The Project
7:30pm nurse change over
Eat sandwiches
Go for a walk around the ward twice.
Get water
Get back to my room and I start to feel dizzy, then nauseous. Can feel the sandwich coming back up. Rush into the bathroom and puke in the toilet, but I end up with some puke on me. Clean myself up. Have also peed my pants. Need to change my undies.
Get myself back into bed and call nurse.
Ask for panadol/painkiller.
Sweating and I'm sure my BP is low.
2:40pm get up to pee. Check my phone and see that LC has posted photo of JT in Concord Hospital. She was washing clothes and got dizzy. Apparently Nathan found here lying on the couch downstairs. Mark drove her and LC to Concord Hospital.
LC stayed with her until the doctors told her to go home. Got Mark to pick her up at 5am.
Sun 01 Dec 2019: Fiona's Christmas Lunch
Lunch at Kirrawee, with Fiona and her house mates.
We made potato salad and jelly, Lily made curried eggs.
Friday 29 November 2019
4pm wake up to do a poo.
Feel some pain, buzz the nurse for panadol.
7am. Dr Gary and 2 others do the rounds. Check wounds and dressing. Says I'm ok to go home today. Says I should try and do normal stuff. I ask if its ok to get my hair done and he 'says "no reason, why not".
Once they leave, I'm up again to do a poo, which is getting back to normal colour.
7:30am nurses handover.
9am breakfast is served. Omelette is overdone. Have vegemite on toast. Chocolate milk.
Need to poo again.
Get changed.
Pharmacist sees me about medication - need to pick uo on level 1 on the way out.
Nurse takes blood pressure etc. Back to normal like when I first came in.
Nurse removes iv. Gives me extra drain bags. I ask what needs to be done, she says when I am ready to go, I just need to let them know, once I've arranged pickup.
Discharge papers given.
11:20am I let LC and JT know. Had to go via lvl 1 pharmacy and get medication. $33.30.
12noon they come to pick me up. Miss out on lunch - bugger.
1:00pm back home and I have a surprise waiting for me. LTS staff have sent me a bunch of flowers.
2:30pm have a cup of noodle with roast pork and cucumber.
3:00pm Jacq gives Kaylene a lift back and stops in for a visit.
5:00pm Linda Savirak visits and brings a bag of mandarins, as well as a bag of assorted tim tam biscuits.
Seeto's also arrive to visit, bringing ingredients to make beef noodle pho. Which JT and A. Cath preps.
7:30pm have dinner - small bowl of beef noodle pho.
9:30pm shower. Wear compression socks as legs are feeling bloated.
10:00pm change my drain bag (80-90ml) - take photo.
Have a choc mint tim tam.
10:30pm brush teeth and go to bed
Thursday 28 November 2019
Wake up at 3am - feeling some pain, so call nurse to give me some pain killers.
I'm woken up at 6am by nurse who takes my blood pressure, pulse and temperature. My BP is low - told to drink more water. Given a panadol which I can take whenever and a pain killer, which I need to take with food.
6:30am I have an antibiotic drip inserted.
7:00am Nurse comes in to flush the antibiotic drip. Brings me 2 bottles of water.
7:20am Dr comes in with locums. Checks dressing. Advises breast care nurse will be in to show me how to do things. May be discharged today??
7:23am Nurses changeover
7:45am Dr Gary comes in with consent for for SPY, tissue expander and flex aid surgery to be signed. Someone will contact me re appt time on Tuesday.
8:18am Dr Ryan pops in to check on pain - tell him I'm ok.
8:45am breakfast is served. Lifehouse breakfast - 1 slice toasted bown bread. Scrambled eggs, bacon, sausage, mushrooms, grilled tomato. Apple juice, chocolate milk. Congee with chicken.
Daz visits with a banana berry smoothie and a slice of banana bread.
9:30am Kate, the breast care nurse shows me how to change the drain bag. How to unclip the battery pack from the pressure pad. Talk to her about my discharge - she will talk to the ward nurse. Gives me a set of drainage bags. Need to see how the nurse changes it.
10:00am Daz leaves.
10:10am Mare drops in for a visit. On her way to have lunch with a relo at Lindt. She leaves at 10:45am. I watch TV but end up getting tire and woozy.
12:15pm Physiotherapist, Satchen shows me what exercises and breathing I need to do. He gets me a pair of non slip socks and then takes me for a walk around the ward. Gets me to go up and down a set of stairs. Gives me a leaflet on the exercises.
12:30pm update my dairy. Watch Ellen.
1:08pm Lunch is served - chicken and vegie pie with carrots, peas and mashed potato.
Go for a walk around the ward. Ask the nurse for towels, and she just directs me to the trolley, so I help myself to 2 towels.
Watch tv, dose on and off.
Do a poo.
5pm shower for first time after surgery. Feels weird with my right side flat and indented.
6pm Bindy, Ange and Vanita visit bringing gifts and food after work. Bindy gives me a pink heart pillow, snacks, hand sanitizer, mini bricks ice cream. Vanita gives me a bunch of Daiso craft goodies. Needle felting kits and "boobie" jello. Chinese egg tarts, mini char siu bau and goodies to brighten me up.
Dinner also arrives. Eat and talk. Gave my sandwiches to Bindy and Ange.
They leave around 8pm to go out for dinner.
Watch Better Homes and Gardens Christmas special.
9:30pm go to sleep.
Wednesday 27 November 2019 - admitted into hospital for nipple sparing mastectomy.
Sick Leave - Med Cert (Y) Chris O'Brien Lifehouse Breast Clinic - Surgery with Sanjay Warrier.
Wake up early. I take with me a foldable backpack - with pjs, toiletries, thongs and glasses.
Catch the 8:49am train to Newtown with JT.
9.30am Level 3 of COBLH. Admittance desk, check paperwork - they have the wrong phone number for Lily's contact details. Paid the $200 OPE with Visa.
10:30am still waiting in waiting room with JT.
10:45am Taken to pre surgery ward by nurse, Keira. My measurements are taken again. Height 149cm and weight 60.9kg.
Another form needs to be completed. Name, DOB, any allergies, teeth, medication.
Then I need to strip down to nothing, given a gown to wear and I can wear netting undies. Not sure which way to wear the gown, get it wrong, need to wear it with the opening in the back.
They then inject me with medication in my abdomen (needs to be fatty area), which regulates my blood flow.
11:15am they finally wheel me in to the anesthetic room by nurse Eric (Filipino). He preps me for the cables to hook up to the machines that monitor heart and pulse. Four spots stuck on my back. Then my pulse and blood pressure is taken.
11:30am Dr Ryan, the anesthetist comes in to check and preps me for an IV administration of anesthetic.
11:45am Dr Sanjay comes in. Looks at tape and markings. Removes the tapes. Takes photo of both breasts. Marks my breast with lines and dots and leaves.
Nurse Eric is back - puts on music from spotify.
Fellow, Dr Fred Hazim comes in - checks charts, but does nothing. Says Dr should be by to do markings.
Dr Gary comes in next, checks forms. Dr Sanjay and Dr Ryan comes back in. Dr Ryan administers 2 shots through the iv. Wheeled into the operating theatre.
12noon operating theatre. See that there is another bed in the room - wonder how they are going to get me on it. And like that I'm out like a light and unaware of the surgery.
2:15pm wake up in the recovery room. Nurse asks me if I am ok. Underarm is feeling painful but otherwise all ok. Not sure if she gives me anything through the IV. Asks for my name and DOB and next of kin. Says she will call JT. Nurse Ivan helps move me to my room Level 9 south 32.
3:00pm Janet comes back to see me after the surgery.
Nurse Keira pops in. Checks pulse and blood pressure. Asks me if I'm hungry and then helps order me food. Choice of ham and cheese or egg mayo. Then orders dinner for tonight and breakfast tomorrow.
Turns on tablet and screen. I select tv, but after a while the table switches off. Need to call nurse to show me how it works.
4:30pm JT goes home.
5:00pm Dr Sanjay and Dr Ananya comes in to check. The inform me that they couldn't proceed with the insertion of the tissue expander. SPY machine indicated skin tissues weren't in a position for them to go ahead. No wonder it seemed like a quick surgery. They only removed the lumps. My right breast is deflated. I am wearing a elastic bandeau bandage, which covers the bandages over my breast and the pico pressure pad, which is battery operated and applies pressure. I will need to come back on Tuesday for further surgery, approx 1hr.
6:00pm nurse gives me 2 panadol tablets and another tablet to have with food.
6:30pm dinner arrives: Ham cheese tomato sandwich and roast beef with pumpkin and zucchini, chicken broth, sweet potato mash, apple juice. I am so hungry, I wolf it down and get hiccups. Quick drink water. Hiccups give me pain.
7:15pm Lily, Justin, Soph (brings a huge boxed native floral arrangement) and Kaylene come visit during dinner time. They bring my colouring book and packet chips, and my power bank.
7:30pm Nurse takes blood pressure, pulse, temp. Asks if I've peed yet.
7:45pm Family leaves, so I ask the nurse, what I need to do to go pee. Need to unhook my drain bag, and take it with me. Not difficult.
Watch the Arias.
8:40pm Daz and Jen drop by with hot chips and toum from El Jannah, but I am so full from dinner, I only have a bit of chips and toum.
9:10pm they leave.
10:30pm sleep.
Tuesday 26 November 2019
Sick Leave - Med Cert (Y): Alfred Nuclear Medical - 1pm -4pm - lymphoscintigraphy
JT and I catch train to Newtown and walk to the medical centre. Get there at 12:50pm. Long wait. When I get called in, Dr Kevin London advises that the tests will take a while, so I let JT know, and she can go for a walk to the shops and explore. An ultrascan is done on my breast. Then he injects 5 injections of coloured dye.
1:30pm directed to another room to massage my breast - to promote the flow of the ink to my lymph nodes. Asked to change rooms, when they need the room I am in, twice.
2:00pm I'm back out in the waiting room. Let JT know that she can go home, no use waiting for me.
2:30pm They get me in the Camera room - take a photo of my front. Then told to lie down, I'm positioned and the camera is lowered above the breasts, very close to the face. Then told to position my arms up. Same thing. Then sitting up - hard one to keep still with breasts up against camera. Then down again. With right arm above head. Then she draws on me and tapes me up. I can't scrub it off. Just need to wash and pat down. The tape needs to be left on.
3:00pm Back out in the waiting room. Go to the toilet. Waiting for the 3D scan which is done by 3:30pm.
Pay for my scan. Have to wait 1/2 hr for the reports.
While waiting I get a call from COBLH informing me I have to pay $200 up front before surgery.
Get the reports and I am finished at 4pm. Walk to the train station. Sue Hoy calls to find out how it's going.
6:15pm Anita calls from COBLH - advised that my surgery gas been scheduled at 9:30am on level 3. Also advised that no food after 12midnight, can drink water up until 8:30am, but the anesthetist had said 6:30am.
Sue and Leonie drop by at 9pm to pick up SU goodies and catch up on the news. Stay for a cuppa and chat.
Monday 25 November 2019
Sick Leave - Med Cert (Y): Chris O'Brien Lifehouse Breast Clinic - 1pm - blood test, anesthetist, breast care nurse appt. Meet JT at station 12noon - catch train to Newtown.
Called Sophie and accepted costs for surgery - notified her that I will be going in as a private patient.
1pm Monday at Chris O'Brien Life House (COBLH).
Janet and I took the train and walked to the hospital.
See Sharyn at the Front Desk on level
Zoe Read is the registered nurse who calls me up.
Takes a reading of my height and weight: 61.9kg
I'm given 2 forms - 1 for pathology and 1 for chest x-ray.
They then take my blood pressure : 133/77
Connect me up and they take a heart reading as a baseline.
We're finished at 1:38pm with Zoe.
Next up I see Nicola Moore - an anesthetist. She asks me a few questions.
Any allergies?
Any previous surgeries? I just tell her about my wisdom teeth removal.
Then she goes through the details of what happens, e.g. will be given anesthetic via the arm. An air tube will be inserted in the throat to help me breathe. Painkillers (tablets) would be given. Expect pain for a week.
We're finished with Nicola at 1:59pm
Next up we meet the Clinical Nurse, Helena, who runs us through what I can expect after surgery. Finish at 2:15pm
Then I need to go to pathology 3:19pm for blood tests - 3 vials are taken, so they can match the blood if required during surgery.
Then finally, x-ray at 3:36pm in medical imaging - x-ray is taken of my chest and left side.
Thursday 21 November 2019
1/2 Sick Leave (Med Cert (Y)) Chris O'Brien Life House Breast Clinic - 2pm -5pm Assoc Prof Sanjay Warrier. His team consists of Kate - Breast Nurse, and Sophie - billing. JT came with me.
Planned surgery:
31524 Right Breast, subcutaneous mastectomy (h) (Anaes.) (Assist.) $1,137.75 Rebate $528.45
45539 Right Breast reconstruction (unilateral), following mastectomy, using tissue expansion - insertion of tissue expansion unit and all attendances for subsequent expansion injections (Anaes.) (Assist) $3113.00 Rebate $1088.35
30300 Sentinel lymph node biopsy or biopsies for breast cancer, involving dissection in a level ii/iii axilla, using preoperative lymphoscintigraphy and lymphotropic dye injection, not being associated with a service to which items 30299, 30302, or 30303 applies (Assist) $584.75 Rebate $194.30
60506 Fluoroscopy using a mobile image intensifier, in conjunction with a surgical procedure lasting less than 1 hour, not being a service associated with a service to which another item in this table applies (R) (LSPN:007774) $435.00 Rebate $58.75
Total Fee: $5270.50
Estimated Rebate: $1869.85
Out of Pocket Costs: $3400.65
+ Anaesthetist fees $
Sophie calls at 3:35pm
Under private health cover, the material Flex HD is covered. If I go as a public patient, it would not be covered.
She gives me a verbal quote over the phone.
$5270.50 surgeon fee
$1869.85 rebate
$3400.65 Out of pocket expenses
Sat 16 Nov 2019: Lea Salonga in Concert
Had lunch at VN City in Stratfield before heading out to the city and the Sydney Opera House to watch Lea Salonga with Janet, Lily and Mare.
Following the concert we visited the Botanic Gardens chasing the Koala Trail - looking for the rest of the koalas.
Sat 09 Nov 2019: Jenly's Cookware Demo
Jenly invited us to her place for a cooking ware demonstration which included lunch.
Made leb bread pizza with bbq sauce, zucchini and ham - delicious.
After the demo, we went to Jacq's and ended up staying for dinner.
Fri 8 November 2019 - Bad news day
My temporary crown fell out that morning. Tried to make an appointment, but no openings, so will have to wait until my other appointment where I get my crown.
Dr Appt. 12pm-1:30pm - Waited for over an hr. Bad News Lump in breast is cancer - referred to Chris O'Brien Life House, RPA - they should contact me on Monday to make appt.
That afternoon, Mare asks if we want to go to the Burwood Public School fete - with LC, KC and Mare, came to pick us up. It was so windy. We bought some Korean dumplings, then followed it with a hotdog. Nothing much, so we walked across the road and visited Burwood Lib for an hour, to kill time. Rejoined the library and borrowed a book (Mare borrowed 4 books on my card) Books are due back on 30 Apr 2020. Then we walked to Clarendon Place (between Plaza and Chinese shops) for Duo Duo ice cream, because Mare and Kaylene had cravings. So over ice cream, I buried my sorrows. We were joined by Jacq and family, and Joy Li.
Wed 06 Nov 2019: Darren's Birthday
Family dinner at Macau Kitchen, Burwood.
Followed by cake at home. I had baked a Japanese cheesecake the night before.
Tue 5 November 2019
Sick Leave (MC) 9:30am-10.30am. Biopsy - Campsie Medical Imaging. Took 2 samples by injection and then another 2 by staple sounding machine. Janet comes with me. We park in a car park. Janet goes for a wander to the shops, while I get the lumps in my breast checked.
Baked Japanese cheesecake for Daz's birthday
Sun 03 Nov 2019: Janet's Birthday
Family dinner at Strathfield Sports club for dinner
Wed 30 October 2019
Sick Leave (MC) - Mammogram and ultrasound appt - 11:30am -1:30pm Campsie Medical Imaging. Lump in right breast. Janet, Lily and I drive to Campsie. They go shopping, while I wait for my mammogram and ultrasound. We have Malaysian after my scan. It's a bit rushed as Lily also needs to go to a medical appointment, back in Burwood.
Friday 25 October 2019
Dr Appt 3:30pm
Ultrasound scan of abdomen - all ok - no signs of gall stones, all other organs ok.
Blood test results - fatty liver ok - but liver count is high - has jumped with each blood test. Need to find out why - requested further blood tests just for the liver. (Liver appt 24 Mar 2020 with Dr Emily Yi Jun He). Had blood test after this apt.
Cholesterol - also increased - may be due to increase in seafood - Hawaii holiday.
Blood pressure - everything ok
Heart monitored again - hooked up to ECG machine - will have to see what results were with next visit. (Results - apparently I have an irregular heartbeat.) Also had measurements taken - height, waist, hips and weight 61.9kg
Mentioned to Dr that I felt a lump in my right breast. She examined it (felt my breast and confirmed that she could also feel a lump) - need to get mammogram and ultrasound.